I saw on Facebook earlier that the Star Legacy Foundation is conducting a "confidential online survey to collect information from stillbirth mothers and those who delivered living children to identify differences in their prenatal experiences and observations." They're hoping to be able to identify stillbirth risk factors and help in future stillbirth prevention research.
I just completed the survey and it took me about 15 -20 minutes. I don't always participate in things like this, but felt like I would do this one. I mean, if we can get more information about what really goes on in pregnancy and get ahead of even one stillbirth cause and save some babies, I'm all in.
I just thought I'd pass it along!
From their website:
The
Star Legacy Foundation announces the launch of a confidential online research study designed to collect information
from stillbirth mothers and those who delivered living children to identify
differences in their prenatal experiences and observations. It is hoped this
information can be used to identify stillbirth risk factors and direct future
stillbirth prevention research.
The death of an
unborn child is a devastating event which occurs over 26,000 times a year in
the US
and over 4.5 million times each year around the world. Approximately half of
these deaths are after 28 weeks gestation (late stillbirth). In most
high-resource countries, the rate of stillbirth has not decreased in recent
years and very little research is being conducted to identify the risk factors
associated with stillbirth in order to develop prevention strategies.
While
acknowledging the pain of any pregnancy loss, this study will focus on late
stillbirth (28 weeks or more gestation).
The study is
seeking participation by mothers of infants, both stillborn and live-born or
soon to be born in this confidential survey. For more information or to
participate in the study, go to:www.starlegacyfoundation.org/
The Star Legacy
Foundation is a 501(c)(3) non-profit organization located in Eden Prairie , MN ,
dedicated to stillbirth research, education and prevention.
University of Michigan # HUM63655.
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